The Lord may not have planned
that this should overtake me but He has most certainly permitted it. Therefore; though it may be an attack of the enemy, by the time it reaches me, it has the Lord´s permission and therefore all is well. He will make it work together with all life´s experience for good. - Rom: 8: 28 With greetings from Ulla Lilienberg |
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March 2004 |
Friday March 14 |
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8:00h Esther is getting ready to go to work, as suddenly
she gets a very strong pain in her head. She vomits and breaks down. Emanuel,
Esther’s friend, called for the ambulance and an emergency doctor. App.
10 minutes later the ambulance came. Esther looses her consciousness Esther
had a cerebral haemorrhage. (in her Cerebellum) At the hospital she gets
operated soon. The bleeding was very strong so that it grew into a big “blood-mushroom”
and would not stopp. The doctors needed to go through her body with a catheter
up to her brain to take the pressure, through an embolisation
out of her blood-vessels before they could start to operate on her head.
(11:10am) After some more tests the real operation started 3:37 pm. This “second” operation lasted more than 7 hours. The reason for the bleeding was that a deformed blood-vessel burst, which she had since her birth. The operation went well. Now Esther is lying in artificial “deep-sleep”. Her state is stable but critical. Anita could visit her about midnight. |
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Saturday March 15 |
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A quite night. All counts are ok. We visit Esther before
noon and try to take up contact with her. We have a feeling, that she is
reacting on our presents. As Gerhard is touching her arm and whispers in
her ear, the blood-pressure is rising. With the repeated CT (computer- tomography)
scans the doctors can see, that the brain is swollen and that the brain
activity is reduced. This is disquieting. It feels good to be close to Esther,
to hold her hand and to pray for her. In the afternoon we have been with
her again for some hours. Uncertainty easily takes over. To know that many
friend pray for Esther give strength. She is in Gods hand! We leave Esther
with prayer at the intensive-care unit.
God! Please protect EstherPs 91,11 For he shall give his angels charge over thee, to keep thee in all thy ways.In many churches people are praying for Esther.Many friends are calling wanting to be informed so that they can pray specific. It is a great blessing to know about all that covering. |
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Sunday March 16 |
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In the afternoon we have been with Esther again. We saw a
great change within a short time. Först we had the impression that
she felt our presence. But then she even did hold Anitas hand at one instance. The doctor said that the brain functions are back to normal again. The brain would be ready for the “wake-up”, but a new complication appeared. Esther was sick the last weeks and had some serious trouble with her lungs. Now it looks as if she got pneumonia. So she shall stay in artificial "deep-sleep". She has fever and twice as high pulse as she should have. Yesterday she had 66 today 136. When she wakes up we want to be with her. The doctor made a notice to call us in advance so we can drive to Vienna when they plan to wake her up. The wake-up will cause new stress, as she doesn’t know yet what has happened to her. She is getting artificial respiration. To wake up with a tube down ones throat is shocking. Especially if you do not know where you are. The waking will also cause stress for the brain again. How good and quick her brain situation has improved is a great answer to prayer Please pray for Esther but also for her boy-friend, Emanuel. It is getting really close at him! |
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Monday March 17 |
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The infection counts are still too high, but the fever has
gone down and the pulse is normal. We thank God for that! Because of the infection-counts they will not let her wake up today yet. Emanuel informed us tonight, after he has been with Esther; The situation is unchanged but stable. Esther is spontaniouly breathing again on her own, but she still gets breathing support. Her artificial sleep is no longer so deep. She is reacting positiv on her medication. We are grateful and see it as a sign of Gods love, that so many people in differnt countries pray for Esther! |
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Tueday March 18 |
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Everything looks like yesterday. Esther has some fever (37,6°C).
She doesn't sleep so deep anymore! Esther is fighting the tube in her windpipe.
I believe that she wants to breath for herself and wake up. The infect in
her body still is a matter of great concern. 7 o´clock pm We just came from Esther. Today all her counts are great (exept for the little infect).Esther is half awake. Sometimes she's reacting. Gerhard said something wrong to the nurse and Esther did shake her head straight away. As Emanuel came into the room and she realized it, she tried to sit up immediatly. Her hands are loosly tied to the bed, so she would not tear away any of the many tubes. Sometimes she is sad and cries a little. She hardly knows anything about what has happened to her. She is not realy awake. She is fighting the breathing tube, which also hinders her speech. She might wake up tomorrow completely. Because of her asthma and the infection the doctors want to wait with the removal of the breathing aid. We could talk to one the doctors which operated Esther. Now we know what really has happened. Esther had a haemangiom in her brain. It is something like a birthmark. It has no funktion and many people have it without ever knowing about it. It's size was about 5cm and it was full of arteries and veins. When it burst open it flooded its surrounding and made pressure on the brain.It would not stop bleeding by itself. The doctor said that Esther was very lucky 1.Within one hour she was in a special hospital where specialists taking care of her. 2. The Haemangiom could be removed without causing any damage to the brain. 3. Normal negative side-effects after an operation like this are missing. With Esther everything looks good and positiv. |
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Wednesday March 19 |
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12:00 noon Esther
was awake earlier today. She had good contact with the nurse. The nurse
had to explain Esther, why she has to keep the tube in
for now. Around 10 o'clock she got som help to sleep again, so that her
body can recover better. Please pray to God, that everything works fine
when they take away the respirator-tube. We have the impression that the
doctors are very nervous because of Esthers asthma. 7:00h pm The afternoon with Esther was very encouraging. She clearly recognizes her visitors. Esther is awake very often and answers correctly to questions by nodding. She even could communicate to Anita tha the sticker on her nose was itching. The medical doctor said, that her neurolocical test result are good but that the lungs are causing concerns because they contain to much water. Not enough to puncture her lungs but they count on Esthers youth to desintegrate it on her own. The doctor said further, that they plan on removing the respirator-tube tomorrow. |
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Thursday March 20 |
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10:00 am The doctor
informed us right now, that it is planned to make an Angiography today.
Angiography is a special X-ray procedure that takes pictures ("angiograms")
of your blood vessels. It is usually done by inserting a catheter into an
artery or vein in your groin. The outcome of the Angiography will be the
basis for the decision, if the tube will be removed today or not. This wil
be a hard day for Esther. 19:00h The Angiography revealed som suspicious spots. Therefore will they repeat it tomorrow with a more fine instrument. There could be some more shortings (direct connections between an artery and a vein) which could burst. They will close those "connections" through the catheter, if they find some. Esther is anwering very well. She even did laugh as good as she could, when I told her, that by getting a ticket, I found out that the area she is living in a "parking fee area". |
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Friday March 21 |
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11:00h The doctors have changes
they mind. They did not do the second angiography. The tube has been removed.
Esther is fine. We will go to see her in the afternoon. |
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Saturday March 22 |
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10:00h We have just called the
hospital. The temperature has not gone down much 37,6°C. Too much
for the morning. Esther sees things which are not there and she has problems
to orientate herself. There is not change with the infection and her lungs. |
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Sunday, March 23 |
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Esther asked us, to send her greetings to you all. She is feeling much
better today. We have talked with her about the things which have happened.
She remembers everything. It is wunderful to see, that she is coming back
to live and daily bussiness. Nobody knows, least of all Esther, how long
it will take before everything is back to normal. The most important thing
for her is to recover her strenght and to have patience with herself and
her situation. |
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Monday, March 24 |
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9:20h I just talked to the angiography
specialist. He said that all "shorting" have been taken care
of. It was a wrong interpratation of his collegues. The "liquor -
congestion" problem he expects will solve itself. In the worst case
a little operation must be done. He was very calm about the whole situation.
We shall pray anyway that the developement will continue as good as it
did until now. She could sit 30 minutes in the chair. She will practice to walk again this week. |
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Tuesday, March 25 |
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7:40h Esther is doing
fine. She still has some headache but is confident! Her condition improves continously. |
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Wednesday, March 26 |
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8:40h Esther is busy training.
She can drive her wheel-chair on own. She is still very weak, but the
improvement is progressing. |
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Thursday, March 27 |
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When we came to Esther today, she was sitting on her bed meeting us with
a smile. It is unbelievable to see her in such a good condition just 13
days after the operation in her head. |
Friday, March 28 |
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Today is one of those days. Her spirits are low, Esther is very tired.
She needs a lot of sleep, and tehre is not much calm time available in
Hospital. |
Saturday, March 29 |
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Esthers E-Mail address EsthersMail@gmx.net
works again. I made a mistake with a link-entry. Please forgive, if this
I caused confusion. Now plans have changed again. Next Tuesday, Esther will be moved to the other hospital, I mentioned earlier. There they have a new rehabilitation ward. This is also the same part of town where she has her apartment. We talked to Esther by phone. Even today she is very tired. But she says also, that it is good to sleep and collect strength. Her spirits are low, but this is not an easy situation. She is worried how she will manage to be taken to the other hospital on Tuesday. Our prayer for today is that Esther will not loose her confidence. | ||
Sunday, March 30 |
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Everything is steady. Something like the last two days. Coming
tuesday we will report the next time, or sooner if something serious happens. Thank you for your support. Gerhard |
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Monday, March 31 |
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12:30am Esther has called and told us, that she will be operated again today. The liquor-congestion did not disolve yet. As Esther sneezed, something in her wound has burst and some liquor has come out. They will open the wound once more this afternoon. Esther, Anita and I are very anxious about the uncertain thing waiting for her. After vi talked for one minute Esther said vi had to stop talking or her head would burst. Naturally Esther will not be moved to the other hospital tomorrow. 8:30 pm Esther has not been in surgery yet, She has
been waiting all afternoon. There has been an emergency so her turn will
probably come tomorrow morning. The planned operation seems to be bigger
than expected at noon-time. Gerhard and I are in Steyr, but Emanuel, Susanne
and other good friends have been with Esther to support and comfort her.
Some minutes ago I called Esther to say good night. She is unbelievable
calm and secure. She knows what will be done, but she trusts the doctor
and asked that we should pray for her. She said: "I know I am in
Gods hand!" Esther you are a wonderful person, I love YOU! You are in Gods hand! |
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Tuesday, April 1 |
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10:30am Now it is starting. Esther is on her way to surgery again. The surgery took 2 1/2 hours. After that I have spoken with Dr. Dietrich
who has done the operation. Because the wound had been leaking liquor
it had to be opened again and closed afresh. At the same time they put
in a drainage so no more liquor-congestion will occure. Today the provider on Tokelau, Oceania (www.ivanovits.tk) was down. I hope this was only a temporary disturbance. |
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Wednesday, April 2 |
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9:00 pm Anita is sitting in a train on her way back
to Steyr. She has been with Esther this afternoon Emanuel is lying in bed with a very bad cold. He thinks he has pneumonia again. |
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Thursday, April 3 |
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Esther had a bad night. She slept bad because of her head-ache. She is not doing so well. Dear Friends, Now we know some more. Last week Thursday the stiches were removed. Saturday: After coughing Esther felt something wet in her neck. The nurse just said that it only came from swetting strongly and cleaned it. Monday: Through sneezing the wund burst and liquor run out. Only on Tuesday she was operated again. Now we know, that she got Bacterial Meningitis from Saturday to Tuesday. Esther said: Yesterday I was mor dead than alive. Her head ache is a little better now. The inflamation count are 50% less than yesterday. Esther can speak some more today. |
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Friday, April 4 |
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10 am. Now I (Gerhard) am going to Esther to help her to eat. Because of the Liquor-drainage Esther is not allowed to lift her head more than 10 cm during 2 -3 seconds. The poor girl must be lying on her back. She may move her arms and legs,
but that's all. She is very positiv, talks a lot (just like her parents)
and has started to really eat again today. Sie kept all food inside. Esther
has no fever but gets twice a day antibiotica. Time after time her strong
headache comes through, when she cannot bear it anymore she gets an injection
against it straight away. |
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Saturday, April 5 |
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The situation is similar to yesterday. Esther just seemed to be more
tired. Even the smallest sound hurts in her head. Liquor drainage gave
yesterday 150 ml liquor today it was only 75ml. Everyday shall they lift
the "pressure-chamber" a little higher. This regulates the level
of pressure. So they can regulated the pressure. I understood that at
the end no more liquor will come out. Then it will run through the normal
canal into the spine. |
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Sunday, April 6 |
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The Situation is the same as yesterday For the Medicals, Esther had: |
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Monday, April 7 |
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I just spoke to Esther by phone. She may (should) sit some. |
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Tuesday, April 8 |
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Today is Birthday Celebration!!!!
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Wednesday, April 9 |
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The Cell-cout has risen some (200). According to the doctor
this has no impact on the improvment. We pray anyway. We take nothing
for granted anymore. First shall they take away the liquor drainage. Anita wants
to stay until this is completed. |
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Thursday, April 10 |
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Today training started for real. In the morning Esther had
her first session. She fainted, to start with. Blood-circulation was not
really up and going the way it should. But this cannot stop a Wiking Girl. |
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Friday, April 11 |
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Eating goes better. Esther can keep the food. |
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Saturday, April 12 |
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Esthers health is improving. Eating and digestion works
nicely. |
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Sunday, April 13 |
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klick to enlargen |
We are very desparete After lunch she slept for half an hour. After that she
shivered and the temperature rose. |
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We talked about Ps 23,4 We also talked about the words from the korean girl, Lindsay Thomas: "Experience is a hard teacher, it gives us the test first and the lesson later!" |
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Monday, April 14 |
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During the night the temperatur increased to 38,5° C. 4 pm Esther started to shiver again. Her
temperatur is rising (38,2°) |
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Tuesday, April 15 |
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This morning again no fever. 5 pm A New Information reaches me: Esther got a rush on her body, the doctor asks if she has had measles before. She is still going to move to the other hopspital tomorrow. |
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Wednesday, April 16 |
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Now Esther has moved to a quite newly-build hospital. She
likes the place and is looking positiv at live. |
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Friday, April 18 |
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Today the doctor had a talk with Esther. |
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Saturday, April 19 |
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Today Anita and I have been with Esther again. The room is good equiped and pretty for a hospital-room. It even has a fridge. |
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Easter Sunday, April 20 |
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It is great to be alive. To be able to get up and take a shower. To see the flowers bloom. |
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Monday, April 21 |
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Today Esther was permitted for the first time to take a
shower all on her own. She only called for the nurse to help her get her
back try. |
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Tuesday, April 22 |
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Today with her trainig hour, Esther had to try to stand on one leg with her eyes closed. She was succesful and is in good spirits. For the coming weeks we will only make notes a couple of
times a week, except something extraordinary happens. |
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Friday, April 25 |
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We can see progress. The muscles of her lower legs are very
sore. In training she has to stand on one leg which is hard work after
all these weeks Coming sunday Esther is having a day off from hospital. We will go with her to her appartment. Rehabilitation has been granted. On Monday she is moving to the rehabilitation center. Praise the Lord!!! |
Sunday, April 27 |
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Today was the
first time in "fresh air". First we took a turn back to the
roots. Pictures |
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Monday, April 28 |
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Esther
is att her new place. She got a single room with a balkony. |
Wednesday, April 30 |
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Thursday, May 1 |
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Trainig is going well but it is hard work.
Esther has to balance on a beam. Climb a ladder and when she gets permission
again she also gets underwater gymanstics. She also gets ergo-therapy
to get back the full use of her left hand. Today I, Gerhard, will pick up Esther and take her for a
hike around Vienna. Esther warned me not to be too ampitious for her strenght
might not take all of it. |
Saturday, May 3 |
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Ambitions were too high. Yesterday she also got spontaneous a new room again. This is both good and strenuous - now everything is the wrong way around in her room. Life is just too strong and too confusing. Esther has training everyday one hour before and one hour in the afternoon.
This is enough for now. Yesterday a last stich has been removed. It had
hidden itself and hindered the wound to heal completely. Pictures |
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Monday, May 5 |
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The world looks much better today. Esther could rest during the weekend. She found her confidence again in planing the near future. |
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Saturday, May 10 |
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Now the time for the little steps has come.
Esther works with accepting that she is “sick”. Her brain
and nerves have to heal. She cannot swim, because her belly-muscles do
not work properly. Her left hand doesn’t do automatically what it
should. Her balance has some disorders. Esther has to learn a lot she
could do before. Pictures |
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Monday, May 19 |
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Esther is doing much better. She servived
the wedding of her collegue very well on Saturday. Also the first test-night
at home went well. Yesterday afternoon she went to her church in the Krummgasse
for the Sunday-service |
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Tuesday, May 20 |
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Anita had a good time in Vienna (May 15-19).
This days she had the chance to see Esther more often. |
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Friday, May 23 |
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The extention of the rehabilitation program
has been approved. Esther may stay at the NRZ on Rosenhügel until
June 22. |
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Saturday, May 24 |
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Anita and I picked up Esther för an
outing. We went to a close-by Village. Esther did some shopping, went
to the bank and to round it we all had a gyros for lunch. |
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Friday, May 30 |
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Today we shall go to Vienna again |
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Saturday, May 31 |
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Hello! It’s ME, Esther. Today I am on day-release and doing some
keyboard training at home. Yesterday was lot of fun, I only get tired very
fast. Than I have to go back to the center. Basically I’m quite happy
to be able to continue the training but slowly everything gets too much.
Sometimes, when I think that I need patience, I become aware of how much
there is that I and my trainers have no influence over. Evil left hand!!!!!!
But I refuse to give up, especially now, after all this time!!
When I walk I do no longer need to hold onto something, not even climping
the stair! |
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Sunday, June 01 |
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Today there was a premier in Vienna. Not at a theater but a happening ur drama "living live". Esther went home by bus - subway - and tram all by herself. A successful
premier! Esther did just fine. The first time to wash her own laundry and to sort out a lot of things
at home. You could see how glad Esther is that live start to approach
"normal" again. She also took the advantage to surprise some
friends with E-Mails and Phonecalls. Right now as I (Anita) am writing
this , Esther is sitting with Annette and Gerald in the living-room drinking
coffee. |
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Lördag, June 14 |
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First of all shall we send greetings from Esther - she is
doing fine.
Last weekend Esther spent two nights in her own apartment. She really
enjoyed it. At last she could do things she can do during three days.
At “training-centre” she is always brought to her limits and
learns what she cannot do. Today it is 3 month that Esther had her cerebral haemorrhage. It was
a very intensive time. We thank God that He kept His hand over her! Her first week in “freedom” Esther will be at home in her
own flat in Vienna. Only when she is home alone she will see how much
really is working. Just this thing with her clothes. When she got sick
in was winter-clothes, now we have more than ~30°C/~84°F and summer,
and there is not much which still fits her. She is of good courage and
says that all things are possible if she only may do them in her time.
She likes to quote her grandmother who said when she broke her leg: “It
should not bother anybody how long it takes!” |
Sunday, June 22 |
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Esther moves home Yesterday we were invited to the restaurant, one of Esthers Reha-Colleges ownes. |
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Tuesday, July 02 |
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Today there was a premier again. The first time after March 14 Esther rode a bycicle again. Pictures |
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Hy dear friends! Leben muss man das Leben vorwärts, verstehen kann man es nur rückwärts… With friendle greetings |
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